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Every Patient's
AdvocateTM
has one important mission:
to improve the relationships
among patients and
providers, with a goal of improving
outcomes for parties.
Who is Trisha?
And why is she Every Patient's Advocate?
Trisha Torrey began her quest
to help others handle the debacle that has
become the American healthcare system after
being diagnosed with a very rare,
life-threatening cancer in 2004. She was
told two labs had independently confirmed
the diagnosis -- and she needed chemotherapy
immediately or she would die within months.
Just short of
starting chemotherapy, and to the great
consternation of her oncologist, she figured
out on her own that she had no cancer at
all. Her
misdiagnosis was later confirmed
by the National Institutes of Health.
The
irony, of course, is that
had she undergone
chemotherapy, she would have
been declared cured of an
incurable disease. The
professionals who had
misdiagnosed her would have
been heroes for curing her
of an incurable disease.
These many years later, she
has never had any form of
treatment.
It was a horrible,
frightening, expensive experience, and
Trisha decided she would do whatever she
could to make sure others would never suffer
the same way.
As she went back over
the all hurdles and
mistakes in her mind,
she realized that even
though it was a misread
biopsy that started the
problem, it was
miscommunications that
had allowed it to become
the debacle it turned
out to be. She
realized that
communications was an
area she had skills in -
and she could begin
addressing those
communications problems
to improve the
healthcare system for
all involved:
Communications for all
parties involved in the
patient's care -
patients, caregivers,
advocates and providers.
That's when she started
calling herself "Every
Patient's Advocate."
Since then, Trisha has
built a substantial
group of tools to help
all parties involved in
healthcare, always with
patients as the central
focus. She originally
launched them under the
name DiagKNOWsis - and
today they all fall
under the
DiagKNOWsis Family of
Activities
umbrella.
In 2006, she began
writing her newspaper
column and hosting the
HealthLink on Air radio
program.
In 2007, Trisha became the
About.com expert in patient empowerment
issues.
In 2008, she was named
CNN's Hero of Patient
Empowerment.
In 2009, she launched
AdvoConnection, a
directory to help patients
find patient advocates.
In 2012, the membership
organization which
supports AdvoConnection
was named
The Alliance of
Professional Health
Advocates.
Her
first book,
You Bet Your Life! The 10 Mistakes
Every Patient Makes (How to Fix Them to Get
the Healthcare You Deserve)
was published in February 2010.
Her second book,
The Health Advocate's Marketing Handbook
was published early in 2011.
Her third book,
The Health Advocate's
Start and Grow Your Own
Practice Handbook
was published in late
2012.
Today you'll find Trisha
expanding her reach
through continued
writing and speaking.
She is regularly invited
to speak to groups of
patients, caregivers,
advocates and providers.
• For
an expanded version of Trisha's misdiagnosis
story,
link here.
• For a
bio and list of Every Patient's
Advocate activities,
link here.
• To
invite Trisha
to speak to your group,
link here.
• For a current
calendar of activities,
link here.
• Media
requests -
information can be found
here.
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